The Silent Place: A Poem About ME Chronic Fatigue Syndrome
The Silent Place by: Sally from Brighton, UK We talk about my pain, The exhaustion that reaches all the way into my bones, The days I can do little more than curl up in bed. I speak about the loss, the...
View ArticleLolly’s Testimony at Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting
Here is a story we recently received from Lolly in Silver Spring, MD. The video is from the Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting, Day 2, on June 14, 2012. If you would like to...
View ArticleIMAGINE: Caitlyn’s Poem About Life With ME/CFS
IMAGINE by Caitlyn From Ben Lomond, CA Imagine if someone told you your life would never be the same happiness, joy and laughter turned to darkness, sorrow and pain Imagine if someone told you there...
View ArticleLife’s Essence: A Short Poem About ME/CFS
Life’s Essence By: Michelle from Mount Horeb There’s so much life around me, and so very little of it left inside me. But that doesn’t matter. As long as I have enough to still see You by, to bear...
View ArticleBetty’s Story About Struggling With ME/CFS
By Betty from Mitchell, South Dakota In December of 2010, just 6 weeks after my baby boy Iver, known to most of you as Gus was born, I began noticing that something was very wrong with my body. You see...
View ArticleCeil’s Struggle With Chronic Fatigue Syndrome (ME/CFS)
I am 63-year-old woman who was diagnosed 8 years ago at 55 with Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia (FM) Seemingly overnight I went from a person with abounding energy to a person with...
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An Excerpt From `My A-Z of M.E. (Myalgic Encephalomyelitis)` by Ros Lemarchand
I have written many poems about M.E. and recently published a book on Amazon called `My A-Z of M.E. (Myalgic Encephalomyelitis)` by Ros Lemarchand. This is what I have written at the beginning of the...
View ArticleA Poem About Chronic Fatigue Syndrome (MECFS)
By: Elizabeth from Pittsburgh It’s nights like tonight when I’m feeling so low, That I sit & cry wondering where did my life go? You would think I’d be over it after almost 15 years. But...
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A Wonderful Piece of Art From an ME/CFS Sufferer
I am a professional artist who has been dealing with CFS for 11 years now. It has been worse than ever the past three years and has interrupted life plans, especially my desire to get an MFA in...
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Join the Stanford Medicine X Global Access Program
In less than a month I’ll be flying to Silicon Valley for Stanford University’s Medicine X conference, one of the premier medical conferences in the world. I have been awarded an ePatient Scholarship...
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